Case Study
Ethnography to Better Engage Patients/Caregivers & HCPs
Objective of the Study
Share detailed understanding of HCP’s perceptions regarding the therapeutic approaches for an ultra-rare disease with a focus on performance, and positioning of the client’s products within the therapeutic landscape.
Methodology
GEOGRAPHICAL SCOPE:France, Germany, Italy, UK, Spain
METHODOLOGY:
Qualitative Immersive methodological approach with the use of Pre-tasks, Ethnographic Interviews and In-Depth Interview
Patients/Caregivers: Patient Journey Mood-Board and Treatment routine 1-week Diary (pre-task) and Ethnographic In-Depth Interviews
Patient Association Group representatives and Healthcare Professionals: In-Depth Interview
TARGET DETAILS:
Patients/Caregivers: 2 adult patients with NC and 2 caregivers of pediatric patients
PAGs: 2 representatives
HCPs: 5 per country covering: Adult & Pediatric Nephrologists, Members of the transplant and the multi disciplinary team
LOI:
Patients/Caregivers: 120 min and 1-week pre-task, PAGs: 90 minutes and HCPs: 60 minutes
MAIN RESULTS
Provided understanding of each milestone encountered along Patient Journey with NC and grasped the emotional impact
Revealed and assessed the relationship dynamic existing among all stakeholders of NC
Deep dived into the transplant experience from both patients and HCPs’ perspective in order to provide a full picture of challenges and impact of this milestone
Analyzed and presented patient journey roadmaps for all stakeholders involved complete with emotional impact of each milestone, therapeutic objectives, level of performance of the medical management and treatment protocols
KEY TAKE-AWAY
Achieved full immersion into living with NC by understanding the challenges, the expectations and the current coping strategies
Provided actionable recommendations on how to support and communicate with all stakeholders
